One of our good friends who lost their daughter to Batten's has had a hand made quilt done to help raise money for research. They will be raffeling it off at the conference this year. Any of you who might be interested in purchasing some raffel tickets please let me know. I have them and you can just send a check to me and I will submit them for you. She will be mailing the quilt out after the conference. Thanks again for all of your love and support.

Midwest Chapter Batten Disease Support and Research Association Raffle for Research Drawing to be held July 19, 2008. 1 for $1.00 or 7 for $5.00. Homemade hand stiched double bed size quilt with two pillow shams. Proceeds will go toward research to help children with Batten Disease.